CA II CommunityFamily Care Toolkit · v1.0 · 10 September 2026

https://ca2deficiency.duckdns.org/ · Educational organizing tool — not a diagnosis or treatment plan

Portable Medical Record

Keeps continuity when changing hospital. Leave personal fields blank for the family to complete.

Diagnosis

Type of renal tubular acidosis (RTA)

Genetic diagnosis

Baseline pH

HCO3

Medications / prescribed doses

Allergies

Treating hospitals

Treating doctors

Major history

Last 12 visits

Date	pH	HCO3	K	Na	Wt	Ht	Dose	Appetite	Activity	Const.	Fracture/event	ER	Decision

Information that should not be lost when changing hospital: RTA type, baseline values, current prescribed doses, allergies, specialty contacts, and a brief fracture/ER summary.

Educational and organizational only. Does not diagnose, set doses, or replace a clinician. What you notice at home is not the same as what is in the medical record, and not the same as what the doctor decides.